Resources
National organizations
Autism Science Foundation: Advocate and funder for high-quality autism research
Autism Society of America (includes its nationwide network of affiliates)
Autism Speaks: Autism Speaks Challenging Behaviors Toolkit
National Association for Dual Diagnosis: An association for persons with developmental disabilities and mental health needs
Together for Choice: Advocacy for a full range of housing and adult program options
VOR:The Voice of Reason: Speaking out for People with Intellectual and Developmental Disabilities
Residential special education schools
National Association of Private Special Education Centers
Adult developmental disability services
ACCSES (Disability services provider network)
National Alliance of Direct Support Professionals
Information about Medicaid
Medicaid.gov (autism page)
Together for Choice: "Uniting to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice."
Information about housing
Together for Choice: "Uniting to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice."
Information about guardianship
Social Security state digest of guardianship laws
Online and other support
A Voice for Joshua Facebook group
Solidarity Parent to Parent support network
Family Voices (a national family-led organization of families and friends of children and youth with special health care needs and disabilities)
Parents of Children with Severe/Classic Autism Facebook group
Specialized resources
Autism Birthday Club Of The World (Facebook group) sends out birthday cards to autistic kids from other autistic individuals.
Autism Help Now dedicated to the cause of opening a Neurobehavioral Unit on the West Coast.
Autism on the Seas Foundation raises funds to provide financial assistance for families to vacation with Autism on the Seas.
Autism Wish Foundation provide autistic children with their most needed therapeutic and sensory items by fulfilling their wishlist.
Forgotten Wishes Foundation primary goal is to be a source of joy and inspire a sense of belonging by creating a community that reaches out to participants multiple times throughout the year. The Forget-Me-Not Friends Club is their first initiative. They created this program to remember friends on their birthdays, holidays, and other occasions with personalized cards, small gifts, and fun stuff.
The Lucas Project recognition and respite for Special Needs caregivers.
Mosaic serves more than 5,200 people in 13 states and 750 communities. Services are tailored to meet individual needs and goals, allowing people to be as independent as possible. Services are designed for people with disabilities, mental and behavioral health needs and autism, as well as aging adults.
Special Wants connects special needs families to help them locate hard-to-find, rare, discontinued or unique items or toys; provides Christmas gifts.
Waves of Impact connecting extraordinary families and individuals to the community around them through surfing.
Medical and Therapeutic Advocacy
Council of Autism Service Providers CASProviders.org
Mental Health and Autism Insurance Project MHAutism.org
Whole Plant Access 4 Autism WPA4A.org
Specific Syndromes
International FOXP1 Foundation FOXP1.org
Phelan-McDermid Syndrome Foundation PMSF.org
STXBP1 Foundation stxbp1disorders.org
Syngap Research Fund Palo Alto, California and England, UK, SyngapResearchFund.org
Tuberous Sclerosis Alliance TSCAlliance.org
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