NCSA comments in response to the NIMH’s call for comments on co-occurring conditions in autism.
Read moreThe Un-Jolly Reality of a Profound Autism Christmas
“As difficult as the trip was, I know so many families have even more challenging situations. Many are no longer able to attend family events or venture into the community because of behaviors. In some cases, they are no longer invited or included.”
Read moreWhy I Need the Term "Profound Autism"
“We cannot have equity without development of waivers that consider the basic realities of profound autism. Our children have very different needs than the people opposing use of the term.”
Read moreLost in a "Bermuda Triangle" of Profound Autism
The new memoir Girl Storm by Peg Kerswell reveals a hidden world where inclusion doesn’t apply.
Read moreA New Reference Guide to I/DD Topics
“Essential Lexicon and Resource Guide” offers an overview of our I/DD system in an easy-to-access format.
Read moreThe NIH Proposes Erasing "Reducing Disability" From Its Mission. NCSA Is Incredulous
With this proposal the NIH threatens to jump into a foreign moral universe detached from its core duties and in conflict with its congressional mandates and the urgent needs and desires of American citizens and taxpayers. We oppose it in the strongest terms possible.
Read moreThe TikTok Effect: How the Social Media App Helps Spread Autism Misinformation
“The ‘autism’ I see in general on TikTok is hardly recognizable to me. The misinformation being shared is becoming increasingly dangerous to the autistics with more profound needs.”
Read moreProfound Autism: A Sister Shares Her Fears About a Bleak Future
“If he moved in with me, not only would I live with constant danger and isolation, but I would also face financial and social ruin.”
Read moreThe Lasting Trauma of a Severe Autism Sibling
“The volatility of the environment I grew up in permanently altered my brain…. The world does not seem to understand, nor care, that autism affects more than my brother. Autism has had a severe impact on how I grew up, and the mental health issues I will have to face for the rest of my life.” First of a two-part series.
Read moreThe September 26th Project 2023: An Autism Family's Cautionary Tale
The family was incredibly lucky that Sandhya was home and outside; that the fire did not start at night while the family slept ("It would have likely been fatal," she said).
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